Resources
Books too numerous to list here address a wide spectrum of breast cancer issues. They can be located by a keyword search on Amazon. In addition, a wealth of breast-cancer-related information resides on the World Wide Web. I made ample use of my search engine, with some discretion, to find various topics of particular interest, whether informative websites, advocacy websites, blogs, or chat rooms. Information can also be found in pamphlets and magazines available at hospitals or doctors’ offices.
Below I share some of the resources that have helped–and continue–to guide me and that have helped countless others facing cancer or interested in cancer-related issues.
- BreastCancer.org (dedicated to providing the most reliable and up-to-date information about breast cancer)
- American Cancer Society
- Oncology Journal (latest information on cancer-related news)
- Living Beyond Breast Cancer (educational conferences, a newsletter, a help line and more)
- Cancer Connect (breast cancer information center)
- Imaginis
- Breast Cancer Research Foundation
- E-Library on Breast Cancer Publications
- Dr. Susan Love Research Foundation
- FORCE (addresses concerns, realities and medical information for women at increased risk of cancer because of genetic susceptibility)
- Breast Cancer Reviews (advice and information on breast cancer)
- The Breast Cancer Site
- BreastCancer.net (latest breast-cancer research)
- Medscape: Hematology and Oncology (sign up for e-newsletter containing latest on cancer research)
- National Alliance of Breast Cancer Organizations (network of breast cancer organizations that provides information, assistance, and referrals)
- Patient Centers for Breast Cancer (a site especially designed for those facing recurrences or Stage IV cancer diagnosis)
- Breast Cancer Connections (general information on breast cancer)
- Breast Cancer Network of Strength
- National Comprehensive Cancer Network Guidelines for Breast Cancer Patients
- Health Central on Breast Cancer (source of breast-cancer information; may ask a question of an expert)
- Inflammatory Breast Cancer Research Foundation (organization to increase awareness of inflammatory breast cancer)
- The Mesothelioma Center (an up-to-date resource for all issues ranging from mesothelioma facts to treatment options; this link relates to asbestos and breast cancer)
- Women & Cancer magazine (general cancer print and online magazine available free for patients and in cancer centers)
- No Surrender Breast Cancer Foundation
- Bosom Buddies (source of videos to help people with breast cancer)
- Pink-Pockets (self-adhesive surgical drain pockets to recuperate in comfort)
- Navigating Cancer-Breast Cancer (resources on breast cancer and recommended blogs)
- Pink Rose Inspiration (breast cancer outreach program)
- The Giving Ribbon (community outreach program with resources for breast cancer survivors)
- National Breast Cancer Foundation - Beyond the Shock (educational resource and online community for breast cancer survivors)
- Latest Breast Cancer (latest news and research on tests, procedures, drugs, and lifestyle options for women with breast cancer)
- Breast Cancer Wellness magazine (information and articles about breast cancer)
- Breast Cancer Sisterhood (information and support on breast cancer)
- BeyondTheBoobieTrap (information and support on breast cancer)
- The Giving Ribbon (breast cancer information for San Benito County, California)
- Breast Health and Healing (information on breast cancer)
- StayinthePink (information on breast cancer)
- A-zbreastcancer (information on breast cancer and also has support group information)
- Pink-link (information on breast cancer)
- tnbcfoundation.org (for those diagnosed with Triple Negative Breast Cancer)
- Advanced Breast Cancer Community (tools and support)
- Owning Pink (information and blog on breast cancer by an M.D.)
- BRCAScoop (information and blog related to BRCA1- and BRCA2, including the latest clinical research)
- Medify, Inc. (breast cancer medical information)
- Abramson Cancer Center of the Univ. of Pennsylvania (premier cancer center)
- The National Cancer Institute (cancer and lymphedema information, and current clinical trials)
- Food and Drug Administration (drug information)
- MedlinePlus (information on conditions and diseases)
- Cleveland Clinic (academic treatment-center site)
- Mayo Clinic information on breast cancer (academic treatment-center site)
- MD Anderson Cancer Center (cancer topics with a wealth of information)
- Johns Hopkins Breast Center (ask an expert/question and answer format; CAUTION: this is not a substitute for asking your doctor)
- Memorial Sloan-Kettering Cancer Center (premier cancer center)
- PubMed (part of U.S. National Library of Medicine containing over 17 million citations of biomedical articles back to the 1950s; includes links to full-text articles)
- National Center for Complementary and Alternative Medicine (NIH site on alternative therapies for treating or preventing cancer)
Cancer Blogroll:
- See the sidebar of my blog page.
- My Treatment Decision (information on making early-stage breast-cancer treatment decisions, including chemo)
- Online decision-making tool for health-care professionals
- Cancer Connect (valuable oncologist-reviewed information)
- Chemotherapy.com (provides information and offers confidential support for people undergoing chemo)
- Neulasta (details on Neulasta (pegfilgrastim) and how to protect against chemo-related infection)
- Aranesp (details on Aranesp (darbepoetin alfa) and treating chemo-induced anemia)
- Managing Side Effects: Amgen (information to protect against infection, treat anemia and manage other side effects of chemo; includes Voices of Experience Support Network)
- Herceptin (general resources and links on the Herceptin drug including support groups)
- National Cancer Institute Comprehensive Cancer Centers (These larger facilities have more experience with breast cancer in younger women)
- Young Survival Coalition (nonprofit network focused on issues unique to younger women with breast cancer–ask questions, read stories, get support through bulletin boards)
- Women’s Infertility Resource (helpful link on infertility, including cancer-related issues)
- Expedition Inspiration (raises awareness and money to benefit breast cancer research)
- Susan G. Komen for the Cure
- National Breast Cancer Coalition (national advocacy group committed to ending breast cancer through action and advocacy)
- Avon Foundation (funding for breast cancer research)
- Genetic Fairness Coalition (for women with increased risk of cancer due to family history and genetic status, and for members of families in which a BRCA mutation may be present)
- I’m Too Young for This! Cancer Foundation (largest national advocacy, research and support organization exclusively for survivors and care providers under the age of 40)
- American Cancer Society Cancer Action Network (ACS CAN)
- National Coalition for Cancer Survivorship (nationwide network of organizations serving all people with cancer)
- National Patient Advocate Foundation (solving insurance and healthcare access problems)
- American Cancer Society
- Cancer Connect (general comprehensive information on cancer)
- Is My Cancer Different? (help for developing questions for oncologist)
- Association of Community Cancer Centers (information on community cancer centers for patients, doctors and scientists)
- Cancer Care (oldest and largest national non-profit agency offering support and practical information)
- Cancer Guide (help in finding the answers to questions about cancer and finding questions you need to ask)
- Cancer Hope Network (offers free confidential one-to-one support to cancer patients undergoing cancer treatments, using trained volunteers who have had a similar experience)
- Prevent Cancer Foundation (dedicated to cancer prevention through research and education)
- Fertile Hope (provides reproductive information, support and hope to cancer patients whose medical treatments present the risk of infertility)
- I care: International Cancer Alliance for Research and Education (provides focused, user-friendly cancer information)
- National Cancer Institute (free resources on all cancer types)
- National Comprehensive Cancer Network (provides care to patients, advancing research on prevention and enhancing effectiveness of cancer care delivery)
- Oncology Nursing Society (information on cancer prevention, detection, diagnosis and treatment)
- OncoLink (University of Pennsylvania’s Cancer Center information site on various types of cancer and updates on cancer treatments and research advances)
- Cancer.net (brings expertise of the American Society of Clinical Oncology (ASCO), the voice of the world’s cancer physicians, to people living with cancer and those who care about them)
- Hope for Two: Pregnant with Cancer Network (matches women newly diagnosed with cancer while pregnant with a woman once given a similar diagnosis, who offers hope, encouragement, and support)
- The Chemotherapy Foundation (dedicated to the control, cure and prevention of cancer through lab and clinical research, and the education of patients and physicians)
- Vital Options International (uses communications technology to reach people dealing with cancer)
- Cancer101 (basic information for cancer patients and their caregivers)
- Cancereducation.com (cancer-related audio and video webcasts)
- Mesothelioma Prognosis
- Mesothelioma Cancer Alliance
- Mesothelioma Association
- 2011 Cancer Resource Guide (cancer survivorship from CURE and the American Cancer Society)
- Cancer with Joy (by Joy Huber)
- Cancer, One Day at a Time (by Wings for Injured Athletes, Inc.)
- Webicina.com (cancer information using social media resources)
- News Digest International ( free source of local, national and international news, including health news)
- Parenting with Cancer (practical advice for how to tell children about cancer)
- Social Medicine.org (a site that hosts multiple social networking sites for a variety of medical conditions, including breast cancer)
- Association of Cancer Online Resources (ACOR (a listing of online support groups and many other links to cancer information and clinical trials)
- Breast-Cancer Action Nova Scotia support forum
- FORCE (a support and information site for women at risk of hereditary breast and ovarian cancer)
- Inflammatory Breast Cancer Support (an email exchange capability for patients with inflammatory breast cancer)
- Cancer Comfort Ministry (Christian support for a cancer journey)
- CaringBridge (personalized patient Web sites for anyone dealing with cancer)
- Talk About Health (community of breast cancer survivors where members ask and answer questions)
- WebMD Message Board (WebMD breast cancer community)
- Breastcancer.org Discussion Boards
- Share Cancer Support (provides support and a 24-hour hotline for women with breast and ovarian cancer)
- Sisters Network, Inc. (National African-American breast cancer survivors’ support organization)
- Her2 Support Group (support group for Her-2 positive breast cancer survivors and their caregivers)
- Gilda’s Club Worldwide (free support community for people living with cancer)
- Casting for Recovery (fly fishing retreats in the US specifically designed for breast cancer survivors)
- TNBC Foundation Support Groups (moderated by an oncology social worker for triple-negative breast cancer survivors)
- CancerSupportCommunity (support groups for all types of cancer)
- A-Z Breast Cancer Support (use interactive map or quick links to find local contact details and web pages offering information on breast cancer support in the U.S.)
- Pink-Link.org (network with other breast cancer survivors)
- What Next (find resources and people specific to your cancer needs)
- I Had Cancer (a cancer support network)
- Blog for a Cure (a cancer blog community)
- Lifting Hearts (a breast cancer support group)
- Breast Cancer Care (a UK-based breast cancer support group)
- Coping with Lymphedema by Joan Swirsky, RN and Diane Sackett Nannery (Avery Publishing Group, 1998)
- Overcoming the Emotional Challenges of Lymphedema by Elizabeth McMahon, PhD (Lymph Notes, 2005)
- Lymphedema Management: The Comprehensive Guide by Practitioners by Joachim Zuther (Thieme, 2009, second edition); also see https://acols.com/ViewProducts.aspx?cid=34&Description=BOOKS
- Voices of Lymphedema: stories, advice, and inspiration from patients and therapists by Ann Ehrlich et al. (Lymph Notes, 2007)
- Lymphedema Caregiver’s Guide: arranging and providing home care by Mary Kathleen Kearse et al. (Lymph Notes, 2009)
- ACS Complete Guide to Lymphedema: Understanding and managing lymphedema after cancer treatment by the American Cancer Society (ACS, 2010-2011)
- National Lymphedema Network
- National Organization of Rare Diseases (NORD) on hereditary lymphedema
- Lymph Notes
- National Cancer Institute on Lymphedema
- VascularWeb on Lymphedema
- Lymphoedema Association of Australia
- International Society of Lymphology
- Lymphatic Research Foundation
- Canadian Partners in Lymphedema
- Healthy Steps (exercise program- Lebed method-for people with lymphedema)
- Breastcancer.org Arm Lymphedema
- Lymphedema Resources
- Stanford Hospital – Lymphatic and Venous Disorders
- Step Up, Speak Out (comprehensive lymphedema information site)
- Northwest Lymphedema Center (self-care classes and videos online)
- Society for Oncology Massage (a group of oncology massage therapists providing information on lymphedema and massage for cancer patients)
- Lighthouse Lymphedema Network (support and information group on lymphedema)
- Vascular Disease Foundation (lymphedema general information)
- Lymphedema Speaks (lymphedema information and stories)
- Lymphedema Mavens (Internet radio interviews of those with lymphedema)
- Juzo
- MediUSA
- Peninsula Medical
- Farrow Medical
- For Your Legs (supplies for legs with lymphedema)
- Compression stockings
- Bright Life Direct
- Bandages Plus
- Bandages Supply
- Lymphedema Products
- Metro Medical Online
- North American Rehab
- Tactile Systems (Flexitouch device)
- LympheDIVAS (medically correct arm wear for fashion-conscious lymphedema patients)
- Lymphacare (information on lymphedema and the Reid® sleeve)
- Solaris (products for lymphedema management)
- JoviPak (products for lymphedema treatment)
- Lymphedema Sleeve Co. (compression garments)
- CompressionGuru.com (compression garments)
- Lymphedema Today (informative posts on lymphedema by an expert therapist, Joe Zuther)
- Lymphedema Blog (latest developments on lymphedema by Joe Zuther)
- Lymphedema People forums
- Lymphland
- Lymphedema Lighthouse Network
- Inspire Discussion Group on Lymphedema
- Tools to help you help others
- CancerNet caregiving tools
- Booklet on caregiving for your loved one with cancer
- Personalized patient websites for anyone dealing with cancer
- Lotsa Helping Hands (scheduling care for those who need help)
- Care Calendar (scheduling care of those who need help)
- Caregiving support
- Empowering Caregivers
- Family Caregiver Alliance
- National Alliance for Caregiving
- National Family Caregivers Association
- CaringBridge
- Caregiver Village
- All Things Caregiver
- Passages in Caregiving: Turning Chaos into Confidence by Gail Sheehy (William Morrow 2010)
- Lymphedema Caregiver’s Guide: Arranging and Providing Home Care by Kearse, McMahon & Ehrlich (Lymph Notes 2009)
- The Breast Cancer Survivor’s Fitness Plan by Dr. Carolyn Kaelin (McGraw-Hill 2006) (features inspiring workouts for breast cancer survivors)
- Drug Watch (detailed information on drugs and medications on the market)
- Health Central (a wealth of medical information)
- WebMD (a wealth of information on medical issues)
- National Institutes of Health (rich resources on health)
- Health NIH (great source of information on health issues)
- The Healing Consciousness: A Doctor’s Journey to Healing by Beth Baughman DuPree, M.D., and Frank Champine, 2nd edition (WovenWord Press, 2008)
- Safe Medication (excellent resource on many commonly prescribed medications)
- Drug Alert (latest information on drugs and their side effects)
- Consumer Reports Drug Guide (a free Consumer Reports guide to medications)
- Tufts University Strength Training (strength training for older adults)
- Women’s Health and Wellness Information (information on women’s health including cancer and lymphedema)
- Ewellness Blog (blog on usefulness of online resources and health information exchange)
- Inspire (wellness information)
- Empowher (wellness information for women)
- Wine and Health (information on the health effects of wine on the body)
- Botanical Supplements Fact Sheet (National Institutes of Health)
- Memorial Sloan-Kettering Cancer Center on herbs
- MedLine Plus Guide to Herbs and Supplements
- Herbal Fact Sheets (National Center for Complementary and Alternative Medicine)
- Info-graphic on Supplements (Drawn from respected research studies)
- Integrative Medicine by David Rakel, M.D. (second edition) (Saunders, 2007)
- Helping Children Grieve: When Someone They Love Dies by Theresa Huntley, revised edition (Augsburg Books, 2002)
- Many Faces of Grief by Edgar Newman Jackson (Abingdon Press, 1984)
- Good Grief by Granger Westberg, 50th Anniversary Edition (Fortress Press, 2010)
- Cleaning for a Reason Foundation (this nonprofit organization offers free professional housecleaning and maid services to women undergoing treatment for any type of cancer)
- Cancer Legal Resource Center (information and resources on cancer-related legal issues to people coping with cancer)
- Medical Malpractice Help (information on medical malpractice, including cancer misdiagnoses)
- National Employment Lawyers Association (a referral service for attorneys specializing in employment discrimination)
- National Coalition for Cancer Survivorship (a referral service for attorneys specializing in cancer-related discrimination)
- Patient Advocate Foundation (a referral service for attorneys specializing in cancer-related discrimination)
Financial Assistance and Careers:
- Cancer Financial Assistance Coalition (helps cancer patients manage financial challenges)
- Co-Pay Relief Program (helps with insurance, job retention and debt issues and provides financial assistance to insured patients with certain cancers)
- National Breast and Cervical Early Detection Program (provides free or low-cost breast and cervical screenings to women who meet age and income guidelines)
- Partnership for Prescription Assistance (helps patients receive medicines they need through public or private assistance programs)
- Ronald McDonald House (offers a refuge from the hospital, a “home away from home”)
- Road to Recovery Program (American Cancer Society program run by volunteers to provide transportation to and from treatment for those with no ride and unable to drive)
- Cancer Coalition of America (nonprofit organization that provides grants to patients who can no longer afford the treatment that is helping them)
- A Silver Lining Foundation (partner with hospitals to provide free mammograms to the underinsured)
- CancerandCareers (careers for those with cancer)
- The Medicine Cabinet (aid with prescription drugs for those who qualify)
- Crickett’s Answer for Cancer (help with wigs and lymphedema sleeves for those who qualify)
- Joe’s House (a non-profit lodging guide for cancer patients who need treatment)
- Check with pharmaceutical companies that provide their drugs; they may be able to offer assistance to those who can’t afford the drug.
- Social Security and Disability Resource Center (a how-to on social security disability benefits)
- Cancer and Careers (resource for working women with cancer)
- Health Insurance Plans
- Health Insurance Information (a consumer’s guide for getting and keeping health insurance)
Journaling about Cancer:
- Treatment Diaries (journaling on chronic illnesses)
- See Lymphormation section of this website.
Home Health and Personal Care








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