- 5-K run
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- 9/11
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- abstinence
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- access to insurance
- acrylics
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- aging
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- alert sleeve
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- Amazon
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- American Cancer Society
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- amusement parks
- ancestors
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- anger management
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- animation
- annual checkup
- anti-anxiety pills
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- applied computer graphics
- appreciation for life
- approval
- April Fool's Day
- Arimidex
- aromatase
- aromatase inhibitor
- aromatase inhibitors
- art
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- artwork
- Ashford Castle
- Ask Dr. Oz
- aspirin
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- AstraZeneca
- Atavan
- Audrey Hepburn
- axial dissection
- baby aspirin
- balm
- Barnes & Noble
- beer
- benefits of exercise
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- bike riding
- bilateral mastectomy
- binge-eating disorder
- binge eating
- bingeing
- biopsy
- bisphosphonates
- bitterness
- Blarney castle
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- blessings
- blogging
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- bone density scan
- Boniva
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- BRCA-1
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- breast cancer
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- Breastcancersisterhood
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- breast cancer susceptibility gene
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- Brenda Coffee
- broken bone
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- Campaign for Safe Cosmetics
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- Captain Paranoia
- cardiac risk factors
- care giver
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- caregiving
- caricatures
- carnivore
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- Castle Chillon
- CDT
- celebrate the ordinary
- celebrating the ordinary
- celebrities with breast cancer
- cellulitis
- cemetery
- centering prayer
- certified fitter
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- Chariots of Fire
- checkup anxiety
- chemical peel
- chemical peels
- chemo
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- chemo-linked menopause
- chemotherapy
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- chest pain
- chest wall
- chest wall metastasis
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- Chick Flick
- Chick Flick Night
- Chick Flicks
- children of parents with cancer
- Christmas carols
- Christmas decorations
- Christmas future
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- Christmas woes
- chronic lymphedema
- chronic pain
- church retreat
- church women's retreat
- City of the Tribes
- City of the Vibes
- Climb Every Mountain
- clinical studies
- clinical trials
- co-payments
- co-pays
- cockpits
- college graduate
- college graduates
- comic relief
- comics
- companioning
- companioning mourners
- Companioning the Bereaved
- companioning the mourning
- companionship
- compassionate curiosity
- compassionate listening
- complete decongestive therapy
- complex decongestive therapy
- compliance
- compression bandages
- compression garment
- compression garments
- compression sleeve
- compression sleeves
- compulsion
- compulsive eating disorder
- compulsive overeating
- Connemara fjord
- Connemara Lady
- cosmetics
- cosmetic surgery
- cost-effective
- costochondritis
- coy pond
- creative writing
- crevasse
- Croft Pentz
- cryotherapy
- daily gratitude
- daily vitamins
- Dallas
- dancing
- David Cornfield
- David Cornfield Melanoma Fund
- day job
- DC
- Dear 16-year-old me
- decisions
- decluttering
- deductibles
- deep breathing
- delete key
- dense breasts
- dense breast tissue
- depression
- Desiring God
- detection
- dexascan
- diabetes
- diagnostic
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- Divorce
- doctor-patient relationship
- dogs
- Don't waste your cancer
- dosing
- double mastectomy
- downsizing
- Downtown Dallas
- Dr. Alan Wolfelt
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- Dr. Oz show
- drawing
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- Dublin
- e-notebook
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- E.C.H.O.
- eating behavior
- eating disorder
- eating disorders
- eating triggers
- ECG
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- EI
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- Emerald Isle
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- emotional health
- Emotional intelligence
- employment discrimination
- empty nest
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- end-stage cancer
- entering adulthood
- EQ
- ER
- ER-positive breast cancer
- Eric Liddell
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- estrogen
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- Evista
- exercise
- Exploratorium
- facelift
- Faith Daily
- falsies
- family
- fashion
- fashionable sleeve
- favorite things
- Feel Better
- female celebrities with cancer
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- fertility
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- fillers
- financial assistance
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- fish oil capsule
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- flap reconstruction
- flume walking
- food addiction
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- for breastcancer
- forgiveness
- forgiving
- Fosamax
- Frankfurt
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- friends for life
- friendship
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- fungal infection
- Galway
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- gardener
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- genealogy
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- Germany
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- Goya
- graduation
- graduation 2012
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- gratitude
- Greatest Generation
- Greek mythology
- green tea
- grief
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- Hauptwache
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- High-risk insurance
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- high-tech
- hikes
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- HIPPA
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- Hoda Kotb
- Hollywood
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- HOTAIR
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- hurtful words
- i-pod
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- imagery
- immune system
- implant
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- implants
- Indian rhubarb
- infection
- infections
- inflamed cartilage
- Ingrid Bergman
- inherited genetic mutations
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- inspirational quotes
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- insurance
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- intimacy
- Ireland
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- jazz dancing
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- John Grisham
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- journaling
- Keep calm and carry on
- keeping calm
- keepsakes
- Kilkenny
- Kindle
- Kindlebook
- Kindle DX
- Kindle for i-pod
- Kindle for PC
- kindness
- Kissing the Blarney stone
- kiss the Blarney stone
- koi pond
- Kylemore Abbey
- lack of estrogen
- Lake Geneva
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- Lance Armstrong
- laptop
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- life changes
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- Lilly Oncology on Canvas
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- lingerie
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- liquor
- Lisa Whelchel
- listening skills
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- living beyond breast cancer
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- living with lymphedema
- lobbying
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- Look Good
- Look Good...Feel Better
- Lori Hope
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- Lymphedema Treatment Act
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- madlib poetry
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- Making Strides Against Breast Cancer
- mammograms
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- marathon
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- menopause
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- mental disorder
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- metastasis
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- moms with breast cancer
- monastery
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- Mother's Day
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- mountain climbing
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- My Favorite Things
- myocardial infarction
- Myriad
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- National Lymphedema Network
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- netbook
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- Nook
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- North Table Mountain Ecological Preserve
- nurse practitioner
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- obesity
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- October
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- oncologists
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- ovarian cancer
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- ovarian cancer awareness month
- ovaries
- overcoming
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- overeating compulsion
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- parabens
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- patient-advocate
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- Patsy Clairmont
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- people with breast cancer
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- personal care products
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- pets
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- photo blog challenge
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- Reach to Recovery
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- regifting
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- relaxation
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- remembrance
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- risk
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- risk of breast cancer
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- Robert Colbert
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- rollercoasters
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- Selah
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- shamrock
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- Six Flags
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- Stage IV breast cancer
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- theme song
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- The Sound of Music
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- think pink
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- Tom Brokaw
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Posts tagged with 'breast issues'
Texas Lymphedema Conference
Because I just moved, I had to delay this follow-up post to my earlier post this month on my week-long trip to Dallas. I didn’t come to the heartland just to see my son, although that alone would be ample reason to visit. The main reason? To attend, as a patient-advocate, the biannual National Lymphedema Network (NLN) Conference for healthcare professionals.
This year the exhibitors outdid themselves, and the presenters waxed professional in every respect.
Wednesday, Sept. 5:
The Tenth NLN conference Research Roundup began on Wednesday with preconference workshops targeted for the medical practitioners. We patient-advocates also could participate if we enrolled separately in the courses. Topics ranged from management of lymphedema (including skin and wound care) to compression and exercise strategies for those with lymphedema. One workshop targeted medical doctors who were interested in learning more about the anatomy and physiology of lymphedema. How refreshing that M.D.’s attended this, so they can take home what they learned to their community of professionals who never heard of lymphedema. We hope the lessons learned from the course will be broadcast all over the U.S. and across the world, since so few doctors know what to do about lymphedema–if they’ve even heard the term.
Thursday, Sept. 6:
We patient-advocates were treated each morning to a special mentoring session with medical doctors specializing in lymphedema. They patiently answered all our questions and helped us understand better the medical jargon and design of clinical studies. Thursday morning we had a nice chat with the doctor assigned for that day, and got acquainted with each other.
The plenary sessions that followed provided a wealth of information on lymphedema research. What I found most interesting were the various presentations on surgical options for lymphedema. The clinical results have come a long way since 2010, when we had the last NLN conference. A pioneering surgeon in Paris has performed more than a thousand lymph node transplant surgeries with some success. Now a surgeon in the LA area who specializes in breast reconstruction surgery has taken up the gauntlet to practice lymphedema surgery in the U.S. His presentation, titled “Combined Lymphatic Liposuction and Vascularized Lymph Node Transfer for Treatment of Long-term, Non-pitting Lymphedema,” raised many questions. After surgery, the patient must continue with the self-care portion of complete decongestive therapy. And most patients must still wear a compression garment the rest of their lives. An interesting discussion ensued on the risk of transplanting healthy nodes from the groin area to the axilla–whether lymphedema could develop in the leg as a result of removal of the nodes.
Friday, Sept. 7:
We had to select in advance our workshops on Friday. I chose “Developing Research Competence,” “Unraveling the Mysteries of Insurance,” “Living with Lymphedema – Impact on Self Care,” and “Integrative Approaches to Lymphedema Management.” Through these seminars I learned how to conduct an evidence-based research study, how to navigate through the Medicare quagmire, how to ensure I give myself the optimum self-care regimen, and how to eat properly and relax. During the last workshop, the lavender scents passed around to us and the lilting voice of the Canadian speaker lulled at least have the audience to sleep, I among them.
Saturday, Sept. 8:
The plenary sessions took over once again. This time we learned about yoga for breast-cancer-related lymphedema (a good thing), body image for those with head and neck lymphedema, and lymphatic abnormalities in contralateral arms in breast-cancer-related lymphedema revealed by near-infrared fluorescence imaging. I don’t have lymphedema in the arm where surgery wasn’t performed, but I know people who do. I plan to be as careful with that arm as I am with my affected arm. No sense taking a chance in view of this new study.
Saturday also gave us two lively debates on lymphedema surgery and on the surveillance model for breast cancer rehabilitation. We got to hear pros and cons for each modality and make our own decision on who is right, or if anyone is right.
Sunday, Sept. 9:
Unfortunately, I had to leave early Sunday morning. But the lectures continued, including some on pneumatic compression for lymphedema.
******
The Exhibit Hall was open for business up through Saturday. This year the hotel ballroom hosted more vendors than I’ve ever seen before. The options for compression garments are overwhelming. Whether you want to be a fashion diva or blend into the environment, whether you have leg, arm, head-and-neck or truncal lymphedema, there’s a product designed specifically for you. And of course pumps and FlexiTouch devices were on display for all to see. Early one evening I was able to get a neck and shoulder massage from one vendor. After that experience, I wanted to go back each evening for an encore performance!
If you are a member of the NLN, the next issue of LymphLink that you receive will contain articles about the conference by all the new 2012 patient-advocates. They will present their impressions and take-home messages from all that they digested.
This conference outshone all the previous NLN conferences I’ve attended. And that’s hard to do!
Now for some pictures of downtown Dallas that my lymphedema therapist took at one of the rare times when we had free moments to spare:
Texas Fun – Deep in the heart
My recent visit to Texas confirmed the cliche that everything is bigger there. My time spent in this special state well exceeded my expectations, which were already big.
After my son Josh picked me up at the Dallas-Fort Worth Airport two weeks ago, we sped away to Waco, home to Baylor University where he’s a senior. That night we caught the last half of the first Baylor football game of the year.
The next morning, Labor Day, after I enjoyed a tasty breakfast at the hotel, we headed off to Homestead Heritage at Brazos de Dios near Elm Mott, TX. That particular day they celebrated a Sorghum Festival with demonstrations in so many ancient crafts: blacksmithing, weaving, grist milling, pottery making and farming. Complete fun, and an escape from all things California.
Hungry, and unable to wait 1.5 hours to get a seat at the Homestead Heritage cafe, we made our way to Cracker Barrel, where we had to wait only 20 minutes for a table. No worries. We easily spent the time scouting their gift shop for the perfect birthday present for his girlfriend. Only a mom could help him solve this problem.
After a lovely lunch we took a break to read in the campus library for a couple hours–I with my i-Pod reading “Invisible Man” and Josh with some kind of textbook. Eager to meet his roommates, I implored him to take me to his apartment where his friend told me they would be. They are just as charming as Josh’s description of them, polite and modest.
Off we then headed to buy us some bubble tea (with black tapioca in the bottom). Mine, an almond concoction, was divine in every sense of the word. We took our drinks over to a famous suspension bridge that crosses the Brazos River. Following tradition, Baylor students throw corn tortillas over the side to see if they land on a concrete pier. If not, the ducks dive and swoop for them. Everyone wins.
Next on the whirlwind tour was a visit to a local park laced with trails and views. Josh coaxed me into climbing the 89 stone steps of Jacob’s Ladder. The problems? I’m out of stair-climbing shape, the temperature well exceeded 100 degrees, and almost every step was higher than a standard step. The next day my legs paid for it, but it was worth the exertion. Anything to have fun with my son in the sun.
The next park destination was Lover’s Leap, which overlooks the river. A fun place to take photos of the view–and of us!
The afternoon wasn’t complete without a kayaking excursion. The Baylor Marina sported all kinds of water craft that day when the students were off from classes. We headed out onto the river and explored inlets. A thoroughly magical excursion, especially when I thought I might never kayak again because our lake house must be sold.
The day still hadn’t ended. We feasted our eyes and taste buds on a local Thai restaurant, a favorite haunt of Josh and his girlfriend. The evening wouldn’t be complete without topping it off with a frozen yogurt complete with delish condiments: fruits, syrups and candies. Fun stuffed us to the gills!
We ended the night watching the movie “Madagascar” at his apartment, a flick requested by yours truly. When he took me back to the hotel, I still had energy for a short swim and hot tub immersion in their indoor facilities.
If this wasn’t heaven, I don’t know what is.
The next day Josh had classes, so he picked me up late morning and we ate lunch at the college dining hall. This place was food court heaven, with any type of cuisine you might desire. Taking advantage of this rare opportunity, I filled my plate high with salad, main entrees, and wraps. Then I went back for a big bowl of soup. You’d think I were a starving refugee.
After lunch Josh dropped me off at Common Grounds, a popular coffee and music hangout adjacent to the campus. I reveled in the funky nature of my environs and the college conversations all around me.
When Josh picked me up he gave me a leisurely tour of the campus, including the building where he spends most of his time. Of course we had to make our obligatory trip to the college bookstore, where I purchased a Baylor University Mom decal. Then we stood in line for root-beer floats at the afternoon Dr. Pepper Hour.
Soon enough, it was time to be dropped off at the campus Starbucks while Josh attended his last class of the day. Sipping a skinny vanilla latte, I listened in on various conversations as I tried to read my book. Soon Josh came and we went out for TexMex at a dining establishment with hubcaps on the ceiling. We finished the night watching “Madagascar 2″. What else could we watch but a sequel?
The next morning, after a hearty omelet breakfast at his dining hall, we headed for Dallas, for my lymphedema conference. More on that experience in my next blog post.
For this post I decided just to focus on the time Josh and I could spend together. I had been looking forward to this trip for two years, since the last National Lymphedema Network conference in Orlando.
And it finally came to be.
The campus visit was far more than this mom (with all the physical and emotional pain she has experienced over the past year) had anticipated. I probably gained five pounds in two days. But I was deep in the heart of Texas, where my son resides and my heart belongs. Where bluebonnets spring up along the roadside at certain times of the year. Where else would I want to be?
Where do you enjoy going when you take a trip? Do you often see family?
Celebrating the Ordinary – Seventh Day
In extraordinary times, the ordinary takes on a glow and wonder all of its own. Mike Lancaster
The final day of Marie’s challenge dawns upon us. I’ve thrived throughout this exercise of paying tribute to the ordinary in our lives, in these times that truly are astonishing. Eye-popping, even.
Today I feature my oldest son at 3 at the Oakland Zoo in California.
Nothing is as thrilling as being lifted by Grandpa!
Now I’m smiling because my baby brother is sleeping and I have Mom all to myself.
I love this ride. I can drive my own car without having to pay for loans, registration, maintenance and insurance.
Mom and I get to ride a horse that goes up and down. Hope I don’t get too dizzy. (Oh the joy of a carousel ride! This little boy’s great grandpa used to restore carousel horses for the City of Rochester, NY during the depression. He never lacked for work during that time.)
Aren’t giraffes crazy looking? How come his legs are so spread out? Does his neck ever hurt from straining so much?
And how about those tortoises? They may be slow, but, my, are they big!
And finally, the petting zoo, where I can beg Mom to buy food for these starving animals. How different this guy feels from the bunny fur and scratchy beard in “Pat the Bunny” that Mom reads to me every night at my insistence.
****
These had to be some of the happiest times of my life, when wide-eyed boys viewed the most ordinary as a miracle, when my parents were alive to witness it all. It’s been a pleasure to feature an extraordinary little boy awed by a world made wondrous by those who create zoos.
May we never lose that sense of wonderment!
Celebrating the Ordinary – Sixth Day
A potpourri of treasured memories.
That’s what I’m celebrating today as the ordinary for which I’m appreciative. And I’d be remiss not to pay tribute to Marie for starting this exercise, which has energized and revived the esprit de corps of those bloggesses who are participating. I believe all our posts are richer as a result of digging deeper to find treasures right under our noses.
The first marvel I’m featuring today can be found right in my living room: a collection of shells and ceramic rocks that my mother treasured, as well as a framed image of a younger me with my three sons. The pendant I draped over the photo, with the simple word “Dream,” came from a women’s retreat I attended last September. After I finished visiting all the prayer stations in one room set aside at the retreat for that purpose, I saw this lone pendant. Next to it was a simple sign urging me to take it. Free.
This simple word “Dream” kept me going through all the dark days that followed. And now I have realized that which I’ve imagined all these months–an independent me making my own choices and charting my own course.
The other treasure, perched on my coffee table, is a clay-designed wine bottle from Del Dotto winery in Napa Valley. Last January I met my cousin and her husband from southern California in this lush location of rolling hills, lavish as much in the money spent there as in the acres upon acres of vineyards. Amidst these special surroundings we tasted superb wines and savored exquisite appetizers while catching up on our lives.
The wine bottle from Del Dotto was so unique that we both decided to save it as decor for our living rooms. To top it off, we both purchased a candleholder that fits into the wine bottle along with two candles that look like corks. We landed such treasures in Healdsburg, a charming town nestled in the heart of Sonoma Valley.
When I returned home I finished the wine, a delightful bouquet of aromas and flavors, and set the empty bottle down with its unique topper. Later I decided to place beneath it a painted tapa cloth made from bark in Rarotonga, a South Pacific Island that our family visited over a decade ago. It seemed only fitting to mix the cultures into an eclectic blend of recollections.
I plan to hold on to these reminders of joyful days, days of which I dream, days to savor and remember those who love me and whom I love.
Unconditionally.
Celebrating the Ordinary – Fifth Day
Well into the week of this writing exercise started by Marie, many of my fellow bloggers have noticed the S-factor, how we unintentionally sync our blog topics about the ordinary: bees, trees, flowers, moves, food, kittens and more. AnneMarie pointed this out in her recent post better than I ever could.
Today, at the risk of diverting “off-sync”, I choose to feature my two sons enjoying imaginative play in the cockpit of a jet. How considerate of pilots and co-pilots to give little boys the opportunity to sit in the commander’s seat. Maybe a pilot gave them this same opportunity when they were little, and inspired them to pursue their dream of aviator careers. All I know is, judging from the smiles on these boys’ faces, they surely appreciated the opportunity to assume the role of captain of their airship.
This ordinary gesture of kindness became extraordinary to these two pre-teen adventurers. And it helps remind me, a newly anointed captain of my own ship, to find opportunities to spark the imaginations of the young people all around me.
Celebrating the Ordinary – Fourth Day
“The greatest meeting of land and water in the world.”
Famed landscape artist Francis McComas hit the nail on the head in thus describing Point Lobos State Natural Reserve on the California coast, featured above.
Day 4 of this writing challenge instituted by Marie at Journeying Beyond Breast Cancer has dawned upon me. And with it a new idea for my “ordinary” to celebrate. This time it’s Monterey and Carmel, California, special bays with special memories.
The first company for which I worked when I moved to California from the East Coast sent me (in place of my manager) to Carmel on a boondoggle. What an honor to be invited into the likes of such esteemed company! Quite pregnant with my second son, I still managed to run with the big dogs, literally, down Highway 1 and around Point Lobos. When I left this company for a better opportunity, my new employer would hold retreats at Asilomar and the wharf in Monterey. My taste for this area only grew the more I visited.
Later, during happier times, my husband and I would make trips down to this spot on the California coast. We rode our bikes around the coastline and dug our bare feet into the sand, exploring all the wonders of the bay. How could we not enjoy tidepools teeming with orange starfish, hermit crabs and sea anemones? We balanced ourselves on the rocks, snapping pictures like the one above and enjoying the sounds of surf and sea, the screeching of the gulls as they swooped, looking for prey.
We encountered many other explorers on those trips, including artists who, like Francis McComas quoted above, weren’t shy about setting up a tripod easel and painting while the public watched. While I didn’t paint on the scene, I did capture in acrylics a portrayal of the photo above. That’s why it has paint spots on it. I just loved the blues and the fact that the gull was watching over everything, not so afraid of humans.
I don’t want to be afraid of humans either.
I cowered in fear at the thought of leaving my family home. Yet somehow I mustered the courage to do it. Like the gull, I now look over the seascape of my life, searching for new possibilities, watching the ebbing and flow of the tide, ever mindful of the slippery rocks, the foam, the riptides. Ever watchful. And ever in awe.
And that’s the ordinary in the aquatic and avian life of the Monterey Bay. I’m transforming it into the extraordinary today.
Celebrating the Ordinary – Third Day
“You know your children are growing up when they stop asking you where they came from and refuse to tell you where they’re going.” ― P. J. O’Rourke
It’s Day 3 of Marie’s challenge to celebrate the ordinary, to find the gems in everyday living.
For this exercise I’m continuing to go back through my archived photos, roaming down memory lane until I find an image that pops out at me as being ordinary, yet extraordinary.
Today I choose to feature the dozen red roses my oldest son Cliff gave me last May for Mother’s Day.
Now this seems like a very ordinary gesture, almost a “Duh” kind of event. But let me tell you the backstory.
At 28, Cliff has not recognized this holiday for many, many years. At lunch every year he would tell me, “Happy Mother’s Day,” but that’s only because he was reminded of the day by the church sermon that morning. Perhaps he had been jaded by other family members that Mother’s Day is simply a Hallmark holiday and not worthy of celebration. Perhaps he just refused to admit any weakness that sentimentality would entail, as the above quote might suggest. Whatever the reason, he has not given me any cards or presents to acknowledge this day since his elementary school days when his teachers forced all the students to craft a homemade gift to honor their mothers.
Before Mother’s Day this year, Cliff emailed me to ask if he could drop by my apartment at 1 pm on the holiday. Of course I said yes. When the doorbell rang at the appointed time, I expected to see his smiling face. What I didn’t expect was his offering of a dozen red roses to mark the occasion. Being a part-time cashier, his budget is quite limited. So I beamed from ear to ear.
The flowers extended to me in a large plastic cup were a bit droopy when they arrived, because they had been sitting without water for a while.
But that didn’t matter.
All that mattered was that my son who first opened my womb those 28 years before had been thoughtful enough to buy a gift for his mother. How ordinary is that? How extraordinary!
































